Photos: Carrying Sky

Jen Allison didn't expect her daughter Sky to survive after birth.  Sky was diagnosed in utero at 20 weeks with several heart defects and organ abnormalities that are compounded by another rare condition, heterotaxy. Sky did survive, and shortly after she turned 1, started to crawl. Now Jen is holding on to every day. "I told her I would carry her as far as she wanted to go."

Ash Adams is an Anchorage-based freelance photographer. Find her work at

Article and video: "I know it's not going to last"